CharlieMC (charliemc) wrote,
CharlieMC
charliemc

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I Think My Memory is Shot... (sigh)

I'm really STRUGGLING mentally right now. I don't know if this is a side effect of the new medication, or what. I found a couple of reports of confusion and memory loss by people on Meloxicam. But I guess I'll have to ask Leslie about it.

Maybe I just need to hang in there. I recall issues when I first took Naproxen. But nothing like this.

Anyway, my memory right now is messed up. And I'm decidedly confused. My friend June said to keep in mind that things with sister Sue (in the hospital) might be part of the issue. I guess so...

I'm trying to do something REALLY HARD at the festival website. And it's been getting more and more screwed up! It's not just that I don't remember how to do it, because the way it's done has CHANGED since last year. David admitted that he reset a bunch of stuff. And we might be back to my lack of full administrative access at the site, as well (which I've harped on about forever now). I don't know, but today was FRUSTRATING! I can't seem to get done what I need to and deadlines are pressing on me!!!

Sister Sue PHONED ME HERSELF from the hospital today! She just seemed to be so good! And she talked about going home three times during that talk. She's not ready, of course. They want to put her into some transitional care for around three weeks before sending her home (according to Candy -- I also spoke to her).

The outtake RN (Zandy) phoned me earlier. She was talking about palliative care. I admit I was unfamiliar with the term. It apparently means: "Palliative care is a multidisciplinary approach to specialized medical care for people with serious illnesses. It focuses on providing patients with relief from the symptoms, pain, physical stress, and mental stress of a serious illness—whatever the diagnosis." I was freaked out we were talking hospice care: "Hospice care is a type of care and philosophy of care that focuses on the palliation of a chronically ill, terminally ill or seriously ill patient's pain and symptoms, and attending to their emotional and spiritual needs." Generally hospice care is assumed to be for the last six months of a person's life... But Marilyn says palliative care can include hospice care, but hospice care isn't necessarily all palliative care (if you follow).

Zandy wanted to have Candy, Larry, Marilyn and me -- and Sue -- meet with a palliative care doctor to discuss where we go now with Sue. I'm not 100% sure Candy wants Marilyn and me included, which is fine, of course.

But I mentioned to Zandy that Marilyn has been Sue's health care manager for years -- and probably knows more about her condition that anyone else -- including Sue herself. Anyway...

Sue ended up calling me a SECOND time, later in the day. She wasn't as good as the first time, but she'd been through a lengthy procedure to insert something -- I think for her new lasix drip they started today. She was very unhappy about that -- but she absolutely needs it!!!

I had a nice (if short) talk with Kris today. And I talked to Donn this morning. Damn! He never called me back! He was going to the doctor today about his wrist -- and very afraid they'd insist on surgery if he hadn't healed properly. I'm supposed to see him in the morning, so I guess I'll find out more then...

I want Kris to fix my Remote Desktop access, because it's making me CRAZY!!!!!!!! I sure hope he can do that. (sigh)

Lots of other work for the festival. Tomorrow is the first princess announcement -- I'm going to do the Social Media part of it... (Keep your fingers crossed for me that I don't screw it up! Heaven forbid.)

I need to wash my hair and get to bed. I'm SO TIRED from this medication!

More to share, but no time.

Marilyn reminded me NOT TO GET MY HOPES UP about sister Sue. Lots of times a person will rally and seem excellent just before they die. (We've seen it in the past.) We're very hopeful and praying hard, but she wants me to be prepared, just in case. This is all very emotional. I'm trying to stay calm, but it's hard. Pray for me, please. And (of course) please pray for Sue! (And Marilyn, too.)

Off to wash my damn hair. I wish I'd done it earlier!!!
Tags: announcements, candy, confusion, donn, festival, festival-website, frustration, hair, hospice-care, june, june-and-jim, kris, larry, marilyn, memory-loss, palliative-care, princesses, remote-desktop, side-effects, sister-sue, social-media, sue-in-hospital, tired, work, zandy
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