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Charlie's Strange and Happy World
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I Think My Memory is Shot... (sigh) 
bad-day
I'm really STRUGGLING mentally right now. I don't know if this is a side effect of the new medication, or what. I found a couple of reports of confusion and memory loss by people on Meloxicam. But I guess I'll have to ask Leslie about it.

Maybe I just need to hang in there. I recall issues when I first took Naproxen. But nothing like this.

Anyway, my memory right now is messed up. And I'm decidedly confused. My friend June said to keep in mind that things with sister Sue (in the hospital) might be part of the issue. I guess so...

I'm trying to do something REALLY HARD at the festival website. And it's been getting more and more screwed up! It's not just that I don't remember how to do it, because the way it's done has CHANGED since last year. David admitted that he reset a bunch of stuff. And we might be back to my lack of full administrative access at the site, as well (which I've harped on about forever now). I don't know, but today was FRUSTRATING! I can't seem to get done what I need to and deadlines are pressing on me!!!

Sister Sue PHONED ME HERSELF from the hospital today! She just seemed to be so good! And she talked about going home three times during that talk. She's not ready, of course. They want to put her into some transitional care for around three weeks before sending her home (according to Candy -- I also spoke to her).

The outtake RN (Zandy) phoned me earlier. She was talking about palliative care. I admit I was unfamiliar with the term. It apparently means: "Palliative care is a multidisciplinary approach to specialized medical care for people with serious illnesses. It focuses on providing patients with relief from the symptoms, pain, physical stress, and mental stress of a serious illness—whatever the diagnosis." I was freaked out we were talking hospice care: "Hospice care is a type of care and philosophy of care that focuses on the palliation of a chronically ill, terminally ill or seriously ill patient's pain and symptoms, and attending to their emotional and spiritual needs." Generally hospice care is assumed to be for the last six months of a person's life... But Marilyn says palliative care can include hospice care, but hospice care isn't necessarily all palliative care (if you follow).

Zandy wanted to have Candy, Larry, Marilyn and me -- and Sue -- meet with a palliative care doctor to discuss where we go now with Sue. I'm not 100% sure Candy wants Marilyn and me included, which is fine, of course.

But I mentioned to Zandy that Marilyn has been Sue's health care manager for years -- and probably knows more about her condition that anyone else -- including Sue herself. Anyway...

Sue ended up calling me a SECOND time, later in the day. She wasn't as good as the first time, but she'd been through a lengthy procedure to insert something -- I think for her new lasix drip they started today. She was very unhappy about that -- but she absolutely needs it!!!

I had a nice (if short) talk with Kris today. And I talked to Donn this morning. Damn! He never called me back! He was going to the doctor today about his wrist -- and very afraid they'd insist on surgery if he hadn't healed properly. I'm supposed to see him in the morning, so I guess I'll find out more then...

I want Kris to fix my Remote Desktop access, because it's making me CRAZY!!!!!!!! I sure hope he can do that. (sigh)

Lots of other work for the festival. Tomorrow is the first princess announcement -- I'm going to do the Social Media part of it... (Keep your fingers crossed for me that I don't screw it up! Heaven forbid.)

I need to wash my hair and get to bed. I'm SO TIRED from this medication!

More to share, but no time.

Marilyn reminded me NOT TO GET MY HOPES UP about sister Sue. Lots of times a person will rally and seem excellent just before they die. (We've seen it in the past.) We're very hopeful and praying hard, but she wants me to be prepared, just in case. This is all very emotional. I'm trying to stay calm, but it's hard. Pray for me, please. And (of course) please pray for Sue! (And Marilyn, too.)

Off to wash my damn hair. I wish I'd done it earlier!!!
Comments 
March 1, 2016 (Tuesday) 10:51 am (UTC)
It's very hard not to get one's hopes up regarding apparent improvements in our loved one's health issues when they are as serious as Sue's are. Hang in there and you all have my best thoughts and prayers.
*hugs*
March 4, 2016 (Friday) 05:06 pm (UTC)
Donna, your thoughts and prayers are GREATLY appreciated!!!

So far, so good. I guess we need to take it day by day. I wish I were a more patient person!

(hugs)
March 1, 2016 (Tuesday) 08:16 pm (UTC)
As regard memory loss I can sympathize with you - I've been there (still am). Words I want are in my head but just won't come to my mouth. Why did I come down here for? etc.
I find doing crosswords at night helps to convince me that given time I can remember everything.

Sorry about your family medical problems. May you be at peace.
March 4, 2016 (Friday) 04:49 pm (UTC)
You know, Athgarvan, I'm still determined NOT to call this an issue of age. I realize that you'd know better than I, but when I talk to all these young people around me, they forget things, too! All the time! They just don't dwell on it like we do. Or maybe we have higher expectations! But we also have one hell of a lot MORE to remember than they do!

Marilyn and I agree with you: It's that missing word or two that drives us nuts!!! And we also think you need to keep helping out the brain with games and other things (good food, sleep and rest and so on).

We're hanging in there. What the heck, that's life!

Thanks for the concern and kind words!

(hugs)
March 1, 2016 (Tuesday) 11:23 pm (UTC)
I'm glad your sister is at least a bit better! Hopefully she will continue to improve!

Hope your memory problems fade. Until then, lots of notes to yourself!
March 4, 2016 (Friday) 04:37 pm (UTC)
Yeah, we're excited that she seems to be improving. The concern is that she needs to take adult responsibility for her own health. It's not like she can rely on her kids (seriously!) to take over for her. And, hey, why should they? She needs to cooperate with her doctor...

Anyway, we're hopeful. Marilyn has put a lot of time into trying to manage her healthcare, but she was going to appointments from work and finding Sue wasn't there! Frustrating for her!

Thankfully I AM the one who keeps notes on EVERYTHING at the festival! Training notes. My own 'how to' website for everyone. And I have extensive notes related to our various accounts, and how to do things on the Server.

It's the day to day stuff that gets to me! Hahaha.

Thanks, Frank. You're always so supportive!!!

(hugs)
March 2, 2016 (Wednesday) 03:12 am (UTC)
I really hope that Sue continues to improve...my thoughts and prayers are with you all.
March 4, 2016 (Friday) 04:45 pm (UTC)
Thanks, Cath! We're all hanging in there, so far. Hopefully Sue is going to really step it up in the future. She's very resistant to the thought of getting exercise (ongoing!), and this is essential for her health (of course).

I really appreciate your concern and kind words.

(hugs)